Oscar's Story
Sharing Oscar with friends and family
useful links
This is a collection of websites, books, videos, and other information I've found useful or inspiring along the way.
Information on trisomy 18
-
website for the trisomy 18 foundation
-
good information on "what is trisomy 18"
-
a special section of resources for friends and family
-
website for SOFT (support organization for trisomy 18, 13 and related disorders)
-
"Trisomy 18 facts" is a good general description
other websites
-
website about supporting pregnancy when baby has a life-limiting diagnosis
-
support and information for difficult prenatal diagnoses
-
pregnancy and infant loss support
-
This space is for you and the grief you carry because your baby is not in your arms,
whether due to infertility, miscarriage, stillbirth, baby or child loss
-
surviving child loss and infertility
BOOKS
A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief
By Amy Kuebelbeck and Deborah L. Davis, Ph.D.
Empty Cradle, Broken Heart: Surviving the Death of Your Baby
By Deborah L. Davis, Ph.D.
By Amy Kuebelbeck
VIDEOS
-
a beautiful memorial video for a baby boy with trisomy 18
-
another touching memorial video
-
a song about carrying to term
other links
Learning About Life from the Woman Who Taught Us About Death
-
a nice artice about learning to appreciate the moment
-
a poignant letter to the bereaved mother
